In 1997 I was on top of the world as a local hot club dj.
Now, ten years later I have a 6 year old disabled child because of someone's stupidity and laziness and selfishness in a high risk birth situation. Now, my daughter is 6 almost 7 and she can walk, but barely. She has hearing loss, expressive language disorder which means she does not speak the English language. Oh yeah...cerebral palsy & mental dificiencieis. We are currently working on sign language. She knows her alphabets, numbers, colors and shapes but cannot carry on a cognitive conversation with anyone. She barely steps out of her world which consists of fast-forwarding and rewinding Elmo videos, or any video she can get her hands onto. She does not play with toys or children in a normal fashion. She is still is diapers and pullups, but we have been working on potty training for two years now. She wears hearing aids, walking braces, ankle brace, wrist brace and that's if for now.
All I can think is....God help m
I think I have more anger and frustration issues mostly. Oh yeah, I suffer from panic disorder and PTSD.
Incoming search terms:
- Twilight zone in sign language
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So sorry to hear about your daughter. My brother has cerebral palsy too. He is 40 years old and not as severe as your daughter. He averages out to function at an average 8 year olds level, meaning he is real good at some things like he puts together 1,000 piece puzzles in one night, but not other stuff like he can not read or do math.
Is your daughter in school. My parents got my brother involved in school as soon as they could. It helped him alot. Now they have more specialized classes that are better than they were when he was in school.
To give you a glimpse of what life is like for my brother now, he lives with my parents and will untill they get too old and can't take care of him, then he will live with me or go to a group home type setting.
He attends a day program that he loves, he likes to be outside doing stuff, he hates having to sit still. He is good at figuring stuff out. Though he cannot read and his speech is not able to be understood. He knows some sign language even though no one in my family knows it. We still understand what he wants, needs, wants us to know because we know him so well.
What I suggest for you is to see if you can get involved in some sort of support group for parents of disabled children, check out your hospitals and schools that have special education classes.
It sounds like you are overwhelmed, which is understandable. Just remember she is doing the best she can, so are you and things will work out.
My brother is a kindest, sweetest, gentlest, most giving person I know. He dislikes no one and he is liked by every one who knows him.
The Number twenty-three ( 200. Anderson manages to take away all of the exhilaration that both these original characters give in their own films, leading to quite a dreary and exhausting experience. This is overacting at its best, and if it were not that it was seriously meant to be a real horror film, would have made one of the very finest horror satire genus films I have ever seen.